This fund was created by Jordan’s family, loved ones, friends and concerned community members upon his diagnosis of Rhabdomyosarcoma, a rare and debilitating cancer that occurs in less than 300 children across the country each year.
The therapies, cures and treatments for rare diseases and cancers in children are frequently underfunded nationwide. This fund plans to raise awareness and advocacy for improved services so that no family should experience the pain and suffering of a loved one with this condition. It is particularly important to raise hope for improvement and recovery, and to ensure that researchers and others have adequate resources and are working diligently to find a cure.